The Canadian Chapter of the National Niemann-Pick Disease Foundation supports and promotes research
to find treatments and a cure for all types of Niemann-Pick Disease, and
we provide support services for individuals and families affected by NPD. Our
Vision...is a world where Niemann-Pick Disease is no longer a threat
to a full and productive life for patients and their families.
The 21st Annual Family Conference will be held in Baltimore, MD this year at the Sheraton Inner Harbor.
Visit the updated Family Conference page for more info.
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~ May 2013 ~ Update on Cyclodextrin Trial - Update from Genzyme on ASMD Development Efforts Update on Cyclodextrin Trial
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The Canadian Chapter of the National Niemann-Pick Disease Foundation was established in April 2005.
The primary goals of the foundation are:
- To promote medical research into the cause of Niemann-Pick Disease and to find a cure
- To provide medical and educational information to assist in the correct diagnosis and referral of those with Niemann-Pick Disease
- To provide support to families of Niemann-Pick Disease patients
- To encourage the sharing of research information among researchers
Our Web site can
help you learn more about Niemann-Pick Disease. The NewsLine, Research, and Media pages
are resources for the latest in NPD news. Meet our board of directors in the About Us section. Click
here to read an introductory
letter from Tammy Vaughan, Chair of the Canadian Chapter of the National
Niemann- Pick Disease Foundation. Feel free to send
us an email as we enjoy getting feedback from our visitors. In the Events section you'll find write-ups and photos from our fundraising events. For donation information,
please visit the Donate Now page.
Thank you for visiting the CCNNPDF Web site, and please let us know if we can be of any assistance!
Foundation News:
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Research News & Announcements:
Family Resources & Support:
"The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) does not engage in the practice of medicine. It is not a medical authority nor does it claim to have medical knowledge. This site is an educational service of the Canadian Chapter of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. Information contained or suggested on this Web site does not constitute medical advice. For all information related to care, medication or treatment, the CCNNPDF recommends consulting a physician to determine if information presented is applicable. Please review these additional cautions about medical information provided on the Internet.”
This site does not host or receive funding from advertising or from the display of commercial content.
The Canadian Chapter of the National Niemann-Pick Disease Foundation is a registered charitable organization. Your donations are fully tax-deductible.
| Web Site updated 05/21/2013 |
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