The CCNNPDF Board of Directors

Mailing Address:

Director of Purchasing and Production Planning, P & H Foods in Hanover, Ontario. Tammy is also on the Board of Directors for the National Niemann-Pick Disease Foundation in the United States and the mother of of Alex and Laura Vaughan, who both had Niemann-Pick Type C. Alex passed away at age 4 and Laura at age 6.

Update from Tammy Vaughan, CCNNPDF Chair, March 2009

tammy.v@nnpdf.ca

Legal Assistant and Trainer at the law firm of Cavalluzzo Hayes Shilton McIntyre & Cornish. Founded the Life for Luke Foundation with her husband Enio Liegghio. Vice-Chair of the Canadian Chapter of the National Niemann-Pick Disease Foundation. Highest title of all however, is being mother of Vanessa and her brother Luke who lost his battle with NPC on June 10, 2005, at the age of 8.

casaliegghio@sympatico.ca

margaret.mackrell@sickkids.ca

Former Director of the Genetic Metabolic Diseases Program, Hospital for Sick Children, Toronto.
Senior Associate Scientist, Research Institute, Hospital for Sick Children, Toronto.
Dr. Clarke's medical degree from the University of Alberta (1965). He trained in pediatrics at the Hospital for Sick Children and obtained his PhD in biochemistry from McGill University (1972). Dr. Clarke is theprincipal investigator on a number of clinical trials of the treatment of lysosomal storage diseases, including Niemann-Pick disease.

joeclark@sympatico.ca

Sandra Cowie, Director-at-Large

slcowie@rogers.com

valerie@cogeco.ca

atomizer@axxent.ca

Dr. Julian Raiman, Director-at-Large

Dr. Raiman is currently the lead clinician for Lysosomal Storage Disease patients in the Division of Clinical and Metabolic Genetics at the Hospital for Sick Children in Toronto, and is a project investigator collaborating on a variety of ongoing trials including being the site investigator for the NIH Lysosomal Diseases Network.  He also sits on the North American Board for the Hunter Outcome survey and the Medical Advisory Board of the CCNNPDF, as well as the Canadian Society for MPS and Allied Diseases.   Dr. Raiman received his paediatric training in the UK and Australia, with his metabolic training having been completed in Toronto.

julian.raiman@sickkids.ca

Adam is Tammy Vaughan's nephew and a Graduate Student at the University of Regina. He is a director on the CCNNPDF board.

deanz@centralgrp.com