Contact Us

Join the CCNNPDF Membership


The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF) is a sister chapter to the National Niemann-Pick Disease Foundation (NNPDF) in the United States, and the two chapters collaborate extensively in various facets of operation.  This cooperative relationship maximizes use of resources while minimizing duplication of efforts and services, and ensures that donors’ generous gifts are faithfully stewarded to bring the greatest benefit to families dealing with NPD. 

The National Niemann-Pick Disease Foundation (NNPDF) is the MAIN line of communication between clinical trial updates and our Foundation Membership. It is critical that the NNPDF Central Office have your updated contact information.

We are asking ALL NNPDF members to fill out an online membership form.  Even if you have done this before ~ people move, email addresses change and the NNPDF Staff wants to be sure that you are receiving all of our communications.

A member is defined as a person or family concerned with the mission and vision of the Foundation.  Membership is conferred upon submission, full execution, and acceptance of an application for membership in the Foundation.

Membership is free and it enables us to better support and provide our families with the latest clinical trial updates and news as they become available to us. This includes:

  • Monthly e-Newsletters sent via e-mail
  • Clinical Trial updates as they become available via e-mail/mail/social medias
  • Yearly hard copy Newsletter sent by mail
  • New member welcome packet with a wealth of information on Niemann-Pick Disease
Please go to our Online Membership Form and submit your information today! 

If you have any questions please email Chris Klauer, Family Services & Marketing Coordinator at or call her at 877-287-3672. 

Prefer to Mail in Your Membership Form?

Membership Form for Niemann-Pick Disease Family Members & Patients
(fillable PDF)

Membership Form for Niemann-Pick Disease Extended Family, Friends and Community Supporters

(fillable PDF)

Contact Us

Mailing Address

National Niemann-Pick Disease Foundation (NNPDF)
P.O. Box 49
401 Madison Avenue, Suite B
Fort Atkinson, WI 53538-0049


Toll Free: 1-877-287-3672
Office: 1-920-563-0930
Fax : 1-920-563-0931


Please send contributions to:

The Canadian Chapter of the National Niemann-Pick Disease Foundation (CCNNPDF)
c/o Tammy Vaughan, Chair
P.O. Box 302
Durham Ontario N0G 1R0


Or donate online using your credit card -- an easy and secure way to donate: Contribute to CCNNPDF online

Let Us Hear From You!

This Web site has been developed to be a supportive and educational tool for individuals interested in learning more about Niemann-Pick Disease (NPD), and for those who have a loved one or family member diagnosed with NPD. We appreciate and welcome your feedback! Please let us know how we can best serve you by contacting our NNPDF Central Offices with your comments at:

Thank you for your time and consideration.

[06/03/2015 ~ blg]