Press Releases

FDA Issues "Complete Response" Letter with Regard to Zavesca (miglustat) for NPC in the U.S. 3/15/10
Barb Vorpahl Testifies to FDA Advisory Committee on Use of Zavesca (miglustat) for NPC 3/1/10
NNPDF Board of Directors Hold 2010 Annual Meeting Group Photo 2/25/10
NNPDF Co-Hosts First International Meeting of Non-Profit Niemann-Pick Disease Organizations 11/18/09
- Photo -- Jim Green of NPDG (UK) and Barb Vorpahl of NNPDF at Scotland International Meeting 11/18/09
- Photo -- Group photo from First International Meeting of Niemann-Pick Disease Organizations 11/18/09
Quandts of Edgewood, Washington, attend First International Meeting of NPD Organizations 11/18/09
- Photo -- Quandts in Scotland at First International Meeting of NPD Organizations 11/18/09
Wisconsin Governor Proclaims October 2009 as Niemann-Pick Disease Awareness Month 10/13/09
- Photo -- Nadine Hill and Barb Vorpahl of NNPDF with Wisconsin Governor Jim Doyle 10/13/09
Edmonton, Alberta, Canada Mayor Proclaims October 2009 Niemann-Pick Disease Awareness Month 10/1/09
Hair Cut-a-Thon to Benefit NNPDF 9/29/09
Brubaker Family Plans Multiple Events to Raise Funds for NNPDF 9/28/09
Dubuque, Iowa Mayor Proclaims October 2009 as Niemann-Pick Disease Awareness Month 9/28/09
Hunter's Hope Golf Tournament to Raise Funds for Research and Family Support Services 8/10/09
Golf FORE Stacey 2009 -- Raising Funds for Research and Family Support Services 6/16/09
NNPDF Board of Directors Hold 2009 Annual Meeting 3/5/09