NPD Family Support and Medical Conference
August 5 - 8, 2010
Delta Chelsea Hotel, Toronto

The 18th Annual Niemann-Pick Disease Family Support and Medical Conference will be hosted by the Canadian Chapter of the NNPDF (CCNNPDF) in the beautiful city of Toronto, August 5th - 8th, 2010!   The site for the conference will be the downtown Delta Chelsea Hotel .

The families of Tammy & Alan Vaughan and Lucy & Enio Liegghio will co-host the 2010 conference in memory of their children, Alex Vaughan, Laura Vaughan and Luke Liegghio, all lost to NPC, together with Sandra Cowie (ASMD) and family.

form graphic Registration Form Mark your calendar and register for the conference using this registration form (pdf) or registration form (Word) .
hotel graphic Hotel Reservations

Conference attendees must make hotel reservations directly with the Delta Chelsea .  Use Group Code GRS NNPDF to receive the conference group rate of $99 + taxes (Canadian) per night. Make reservations online , or from anywhere in North America call toll-free: 1-800-243-5732.  From elsewhere call the global toll-free number: 1-800-268-1133.

handshake graphic Helping Hand Stipend The Helping Hand Stipend is for member families who need financial assistance to be able to attend the Family Conference.  Please apply by June 15th.  Application: (pdf) (Word)
Toronto skyline graphic Toronto Tourism Information To learn about the many exciting attractions and cultural opportunities Toronto has to offer, visit the See Toronto Now Web site.
jet airliner International
Travel Tips
These tips and links to further resources will help you plan your trip well, particularly for family members who have a chronic medical condition.  Visit the Transportation Security Administration's Web site for more information including what you can carry onto your flight (prescription medications, oxygen, wheelchairs), etc. The U.S. Department of Transportation offers this publication titled New Horizons for the Air Traveler with a Disability .
Question mark graphic FAQs
(Frequently Asked Questions)
We've compiled this list of FAQs (Frequently Asked Questions) we hope will be helpful to you.  If you have a question we haven't addressed, please don't hesitate to contact us .  We will do all we can to be of assistance as you plan your family's trip to Toronto!

We are busy making plans for speakers and sessions to bring you all the latest information with regard to Niemann-Pick Disease.  We are also seeking sponsors and in-kind donations to help defray the cost of the conference.  If you have an idea for a potential sponsor or corporate donor, please email Tammy Vaughan , CCNNPDF Chair. Letter requesting sponsorship/donations.

The site for the conference will be the downtown Delta Chelsea Hotel .   The hotel offers Fully Accessible Rooms (19) and Modified Accessible Rooms (20) on a first-come, first-served basis. Make reservations online or call 1-800-243-5732.  Use Group Code GRS NNPDF for the special $99 (CAD) per night rate (plus taxes and fees).


To see and learn more about all that Toronto has to offer, please visit the "See Toronto Now" web site: www.seetorontonow.com

[ Please note: Travelers coming to Toronto from outside Canada, including those from the U.S., will require passports.  U.S. travelers, please refer to the NNPDF site for more details about international travel.]

The 2009 conference in Seattle was hosted by the family of Karen & Gene Quandt, in honor of their son, Ty (Age 12, NPC). The following link includes two fun slide-show recaps and a link to the memorial video from this event. /familyservices_03.html

[March 26, 2010 mem]