October 2010 - Niemann-Pick Disease Awareness Month

9th Annual National Niemann-Pick Disease Awareness Month
October 2010

Please Support the NNPDF's October Awareness Online Auction!

October is the time to raise awareness about Niemann-Pick Disease! We need to get the word out about this rare disease to doctors, families, government leaders and the general public.

Activities can be simple or complex, but please make some time during October to reach out and tell your story! Below are some tools available from the NNPDF to help you.

We invite and encourage each family to look within their family structure, friends and community support networks to create their own team and sponsor an awareness campaign and/or fundraising event during October 2010.

Members like YOU are the key to the NNPDF's success! It has been a team effort which has propelled the foundation forward the past eighteen years and it is a team effort that is the key to empowerment against this disease.

Won’t you please join us in our efforts to raise awareness of NPD and to illuminate the vital call for continued funding of urgently-needed research into Niemann-Pick Disease?

We are here to help you!
Below are some tools available from the NNPDF Central Office to help you. We ask that you notify the foundation office of your events so that we can post them onto the Web site. We want to be supportive of you as you prepare for your event, and sharing your event information will serve to inspire other families as well.

Family and Friends Letter in support of October as NPD Awareness Month:

• Sample Family & Friends Letter
• Sample Family & Friends Flyer
• Family & Friends Questionnaire/ Form

Let us do the work for you!

Linked above are examples of a Family and Friends letter and flyer that we will help you customize to your unique family situation.

Simply complete the family questionnaire, return it to the NNPDF office, and we will have the customized letter and flyers (approved by you) printed and shipped to you.

All you need to do is address your envelopes, add postage and mail them out!

NNPDF Resources for your campaigns:

• NPD Awareness Items
• CCNNPDF Posters
• Brochures - NPC and ASMD (Types A/B)
  
• Request for a Proclamation (sample)
• Press Release (sample)
• Fundraising Packet -- a handy “how to” guide that will walk you through all aspects of hosting a fundraising event (Contact the NNPDF Central Office ~ we will be happy to help you!)
• Awareness Ad -- Created by the Charleston Orwig advertising agency, this is a powerful statement of why Niemann-Pick research is important to everyone. The ad can be printed for use as awareness flyers.
• Contact the NNPDF Central Office if you need additional resources

Examples of past Awareness Month Activities

• Mayors' citywide proclamations
• Friends and Family letter campaigns
• Persevere wristband sales
• Casino night
• Family luncheon in celebration of a loved one with NPD
• Yankee Candle fundraiser
• NP day at the amusement park
• Classic car show
• Distribution of brochures
• Spaghetti dinner fundraiser
• Walk-a-thons, 5K and 10K run/walk
• School poster campaigns
• Golf tournaments
• Silent auctions & raffles
• Chamber of Commerce mailing
• Penny challenges at elementary schools

Please click here for more details about events being sponsored by our families.  (Be sure to let us know your plans so we can update our map.)  Contact us for more information about easy ways to get involved in October National Niemann-Pick Disease Awareness Month.

NNPDF Online Auction Bidding Open through Oct. 31st!

PERSEVERE AWARENESS
ITEMS/PRODUCTS

NPD PERSEVERE PIN
Help raise awareness of Niemann-Pick Disease with this colorful gold pin. It is an attractive addition to a lapel, jacket, hat, purse, backpack, etc.

The NNPDF Persevere pin is approximately 1 1/2 " wide by 1" high.

Persevere Pin Order Form

The PERSEVERE Wristband (worn above).

"We, the families of the children affected by Niemann-Pick Disease thank you for joining us as we persevere in our quest to find a cure."

Wristbands can be sold for $1.00 each as a simple fundraiser, easy for even children to sponsor. 
Youth and Adult wristband sizes are now available.

Persevere Wristbands
NNPDF Vinyl Banners
NPD Posters (3 designs)
Additional NPD Awareness Items

PERSEVERE CLOTHING
Quality garments created and supported by the Leon and Lorna Tyrrell family in honor of their daughter, Naomi (age 7, NPC)

Persevere Wear Order Form

For all the details on the family events listed below, visit our Upcoming Events page.
(Please let us know what your family is planning so we can post it here, as well!)

Alabama

California

Canada

Alberta

Cardinal Family and Minde-Redcrow Family - Awareness video (Cardinal Family) and Facebook awareness pages (Cardinal and Minde-Redcrow Families) - in Memory of Damon Cardinal (NPA) and in Honor of Tehyez Minde (NPA).  Click here to view the new awareness video on YouTube.

Ontario
Cowie Family - Donation of items to NNPDF October Awareness Month Online Auction - in Honor of All Affected by NPD

Connecticut

Iowa

Louisiana

Maryland

Massachusetts

Michigan

Missouri

New Mexico

New York

Oregon

Pennsylvania

South Dakota

Texas

Virginia

Washington

Wisconsin