"Here for You Always" -- Special Music Video Project

Singer-songwriter Rachel Taylor, cousin of NNPDF member Lorna Tyrrell (mom of Naomi, NPC), has a song on her new CD titled,
"Here for You Always."

The song's message is so appropriate for our loved ones with Niemann-Pick Disease that we decided to create a video/slideshow montage of the song set to photos of our NNPDF members, and we are asking for your help!

(Please respond by Valentine's Day -- read below for details.)

Contact NNPDF Photo Release Form - Please Complete

For this project, we are gathering a few choice photos of children and adults with Niemann-Pick Disease together with their parents, grandparents, siblings, friends, classmates, pets, etc., to illustrate the song's lyrics of love, support, and nurturing relationships.

The photos on this page are good examples of what we are looking for -- photos that illustrate relationships (as opposed to individual portraits).

You can hear Rachel Taylor's song
"Here for You Always" at her Web site:

www.racheltaylormusic.com

At the site, click on the little speaker icon to the left of the song title, and make sure your computer volume is turned up.

Here for You Always

I don’t know what you want but I want to give it to you
I don’t know how you feel but I want to feel it with you
Don’t know what’s going on inside
Don’t know the twists and turns of your mind
I’m gonna be right here

I’m gonna be the one who holds you tight
Night and day, be the one to hear you say
That I’m the one for you and I will always stay
I’m gonna be here for you always

If you’re feeling down, I want to pick you up
I don’t know how much more
my heart could get filled up
See you in the distance across the room
I want to make a B line over to you
I’m gonna be right there

I’m gonna be the one who holds you tight
Night and day, be the one to hear you say
That I’m the one for you and I will always stay
I’m gonna be here for you always

This is love this is love this is love like
I’ve never known it before
I will try I will try I will try I am trying hard
to show my love
To the one that I adore.

Here is a YouTube video of Rachel Taylor and her band performing the song live: Rachel Taylor - Club Passim

Please choose one or two favorites from among your family photos and email them to us here at the NNPDF by Valentine's Day, Monday, February 14.

JPG format is preferred, sent as an attachment to an email. Please send photos in higher resolution rather than lower, if possible.

Please note that by emailing us your photos in response to this request, you are giving your consent for us to use them in this video/slideshow montage.

We ask that you also complete this authorization form and submit it with your photo(s).

When finished, the video montage will be posted to the NNPDF Web site, the NPD Awareness Facebook pages, etc.

As always, if you have any questions or need assistance, please contact the NNPDF Central Office, and thank you for your continued support!

[Jan 4, 2011 mem]

	Here for You Always I don’t know what you want but I want to give it to you I don’t know how you feel but I want to feel it with you Don’t know what’s going on inside Don’t know the twists and turns of your mind I’m gonna be right here I’m gonna be the one who holds you tight Night and day, be the one to hear you say That I’m the one for you and I will always stay I’m gonna be here for you always If you’re feeling down, I want to pick you up I don’t know how much more my heart could get filled up See you in the distance across the room I want to make a B line over to you I’m gonna be right there I’m gonna be the one who holds you tight Night and day, be the one to hear you say That I’m the one for you and I will always stay I’m gonna be here for you always This is love this is love this is love like I’ve never known it before I will try I will try I will try I am trying hard to show my love To the one that I adore.

	Please choose one or two favorites from among your family photos and email them to us here at the NNPDF by Valentine's Day, Monday, February 14. JPG format is preferred, sent as an attachment to an email. Please send photos in higher resolution rather than lower, if possible.
Please note that by emailing us your photos in response to this request, you are giving your consent for us to use them in this video/slideshow montage. We ask that you also complete this authorization form and submit it with your photo(s). When finished, the video montage will be posted to the NNPDF Web site, the NPD Awareness Facebook pages, etc. As always, if you have any questions or need assistance, please contact the NNPDF Central Office, and thank you for your continued support!