NPD Family Support and Medical Conference
August 5 - 8, 2010
Delta Chelsea Hotel, Toronto

The 18th Annual Niemann-Pick Disease Family Support and Medical Conference will be hosted by the Canadian Chapter of the NNPDF (CCNNPDF) in the beautiful city of Toronto, August 5th - 8th, 2010!   The site for the conference will be the downtown Delta Chelsea Hotel.

The families of Tammy & Alan Vaughan and Lucy & Enio Liegghio will co-host the 2010 conference in memory of their children, Alex Vaughan, Laura Vaughan and Luke Liegghio, all lost to NPC, together with Sandra Cowie (ASMD) and family.

calendar graphic Important Dates and Deadlines

"Save the Date" cards mailed -- April 1st
Helping Hand Stipend Application deadline -- June 15th
Conference Registration deadline -- July 1st
Hotel Reservation - Special Conference Rate guaranteed until -- July 1st
form graphic Registration Form Mark your calendar and register for the conference using this registration form (pdf) or registration form (Word).
hotel graphic Hotel Reservations

Conference attendees must make hotel reservations directly with the Delta Chelsea.  The special conference rate is $99 + taxes (Canadian) per night.  Please click here for more details about booking your room(s) at the Delta Chelsea, including the Group Code to use for the special $99 room rate.

handshake graphic Helping Hand Stipend The Helping Hand Stipend is for member families who need financial assistance to be able to attend the Family Conference.  Please apply by June 15th.  Application: (pdf)   (Word)
Toronto skyline graphic Toronto Tourism Information To learn about the many exciting attractions and cultural opportunities Toronto has to offer, visit the See Toronto Now Web site. Toronto is a vibrant and extremely diverse city with something for every member of the family!
jet airliner International
Travel Tips		 These tips and links to further resources will help you plan your trip well, particularly for family members who have a chronic medical condition.  Visit the Transportation Security Administration's Web site for more information including what you can carry onto your flight (prescription medications, oxygen, wheelchairs), etc. The U.S. Department of Transportation offers this publication titled New Horizons for the Air Traveler with a Disability.
Question mark graphic FAQs
(Frequently Asked Questions) 		We've compiled this list of FAQs (Frequently Asked Questions) we hope will be helpful to you.  If you have a question we haven't addressed, please don't hesitate to contact us.  We will do all we can to be of assistance as you plan your family's trip to Toronto!

We are busy making plans for speakers and sessions to bring you all the latest information with regard to Niemann-Pick Disease.  We are also seeking sponsors and in-kind donations to help defray the cost of the conference.  If you have an idea for a potential sponsor or corporate donor, please email Tammy Vaughan, CCNNPDF Chair.    Letter requesting sponsorship/donations.


Hotel/Conference Center
The site for the conference will be the downtown Delta Chelsea Hotel.   The hotel offers Fully Accessible Rooms (19) and Modified Accessible Rooms (20) on a first-come, first-served basis. The special conference rate is $99 (CAD) per night rate (plus taxes and fees). Children age 6 and under eat free when staying with their parents at the Delta Chelsea, and children ages 7 to 12 eat for half price from the regular menu.  In-room (wired) internet access is available for $13.95 per day, and there is free wireless access in the lobby and garden/restaurant.  

Make reservations by calling 1-800-243-5732 (use Group Code GRS NNPDF when calling); or  make reservations online (use Group Code GNPDF when booking online).   When booking online, select from the dropdown menus as follows:  Region - Central Canada; Province - Ontario; Destination -Toronto; Hotel/Resort - Delta Chelsea.


To see and learn more about all that Toronto has to offer, please visit the "See Toronto Now" web site: www.seetorontonow.com

[Please note:  Travelers coming to Toronto from outside Canada, including those from the U.S., will require passports.  U.S. travelers, please refer to the NNPDF site for more details about international travel.]

The 2009 conference in Seattle was hosted by the family of Karen & Gene Quandt, in honor of their son, Ty (Age 12, NPC). The following link includes two fun slide-show recaps and a link to the memorial video from this event.   http://www.nnpdf.org/familyservices_03.html

[Apr 20, 2010 mem]